Sunday, March 30, 2014

Shooting our wounded *updated*

 

 

Y’all… CHICKS ON THE RIGHT picked this up.

 

And linked to my little ol’ blog.

 

Let’s be honest here… first I was like:

baptism

 

And then there was a fair amount of screaming.  My husband may now be considered legally deaf.

 

 

Because I knew they were going to share from a hearing person’s perspective… just how offensive that article was to so many people who are doing nothing wrong by celebrating a joyous part of someone’s journey.

 

But even better than that?  The Chicks followed up with some really terrific news about Joanne Milne, the woman who heard for the first time after her cochlear implant was activated.

 


A glaring fact that the first article’s author omitted, was that Ms. Milne has Ushers Syndrome.  I have several deaf friends with Ushers – a cruel disease that takes both sight and hearing.

Ms. Milne is in a race against time to preserve what independence she can  - as a legally blind person who is losing her hearing.  Many Deaf community members might claim that their hearing loss is part of their culture (it is), but I doubt many of them would be willing to spend their lives in complete darkness and silence if there were something they could do to maintain more contact with the world around them.

 

And before any accuse me of assuming deaf-blind persons cannot be independent and productive members of society, I’ll share that I have two deaf-blind aunts who live independently and retired after years of working for BOEING.

 

Y’all, your plane parts were put together by incredibly talented deaf and blind people.  They have earned every bit of pride they have in themselves.

 

See, that was a whole bunch I’ve never shared here before.  Which makes it really silly for someone to make blanket statements about people watching happy videos, right?

 


Now, I’ll send you off to the Chicks on the Right perspective, while I go scream some more :)

 

~

 



I don’t share this often.

 

Because the fallout is brutal.

 

I’ve been asked to write about deafness for big name websites… social media brands you’d recognize.  I turned them down, knowing that the backlash I’ve experienced in my own life would only be compounded by exposure to the anonymity of ugly online opinions.

 

I doubled down on ensuring anything related to our blog or Facebook or Twitter or Google+ or… a myriad of other sources would be as drama-free as possible.

 

 

Because frankly, I care about YOU.  The readers who have been with us for 7+ years.  Who supported us through infertility, cancer, losing mom.  Who laughed with us about squirrels and elbutts and shopping with toddlers.

Because you knew us as Mr. Daddy, Rachel, and Itty Bit.  And Rachel just happens to be deaf.

 

I feel like you would hear my heart because I’ve never claimed to be perfect.  And in sharing it now, I realize that this opens up this community to those aforementioned opinions from others. 

 

The irony is that most hostility is likely to come via social media other than here… since you guys have made this such a place of support. 

 

 

Here is what I wanted to share:  being deaf comes with an incredible myriad of choices for how to communicate with the world.  There are some who chose to communicate primarily through American Sign Language (ASL), others who use different sign languages, others who learn to lipread and to speak, still others who use written messages, some who receive cochlear implants, some who use hearing aids, and some who will use countless combinations of these.

 

There is a community that makes a distinction between being deaf and being Deaf.  The capital-D Deaf signifies that for the majority of these persons, they rely on ASL and many believe that hearing aids or cochlear implants are an unnecessary attempt by the hearing world to “fix” us.


This was the purported viewpoint of a woman with deaf parents who authored this article:

 

cochlear implant

 

She wants you guys to stop sharing those videos, y’all.

 

Because she doesn’t want people thinking that deaf people need to be fixed or that cochlear implants are a fix.


Nevermind that the people in the videos have chosen to share a part of their lives.  A moment that undoubtedly had much emotional investment because they’ve made such a personal decision to do something in order to help them toward a goal they are pursuing.


And frankly?  I am not going to be shamed out of celebrating with them.  I won’t shame you guys for not expecting the video to be a full documentary of everything that led a person to this decision, and everything that they’ll face afterward.

The author paints every viewer as a person uneducated about hardships these people may face.  But to a person… (life is pretty consistent this way) every single life is filled with UNIQUE hardships.

 

 

It’s just like I’ll celebrate with the mother holding a newborn… whether I know that her son was after seven hopeless years of infertility, whether that baby is her newly adopted daughter, whether he has down syndrome, whether she’ll have autism, and whether I know how any of their lives turn out in the grand struggle and delight of life.  Because ohmygosh, she’s HAPPY and radiant and joyful and excited and breathless with what she is going to do in the world.

 

I am just so incredibly frustrated by the author’s response to these beautiful moments that people are sharing.  Not that she’s attacking the persons choosing to get the cochlear implants (oh, but she is… can’t you feel it?), but that she’s attacking YOU.  For spending the moment happy with someone.

 

She calls it “maudlin”.

I looked it up just to see how officially insulting it was.

showing or expressing too much emotion especially in a foolish or annoying way, drunk enough to be emotionally silly, weakly and effusively sentimental - - Merriam Webster


Is that what you got out of this video?

 

 

 

Or this one?

 

 

 

Or this one?

 

 

 


Ever had something to celebrate?  And noticed that killjoy who refused to join?  I won’t be that person.  I am so saddened that this is another example of the Deaf community shooting their wounded. 

 

Rejoice with those who rejoice.
 Romans 12:15

 

 

Ironically, the author acknowledges that some who receive cochlear implants “no longer feel welcome in the Deaf community”. 

 

NO REALLY?



Let’s all consider: you make a monumental decision, share it with your community, and not only do they not support you, but they attempt to shame others who would.

So if the author’s goal was “education”… that you could learn all kinds of new things about the Deaf community and how to interact with them and be part of what makes them unique – I’d be grateful if you’d take in part of my story – a hard-earned education.

 

 

I was three years old when my mother noticed me shifting the phone to my other ear when talking to my grandmother.

1rachmikey1978

 

On my fourth birthday, I suddenly lost the rest of my hearing and became profoundly deaf.

scan0004_thumb[2]

 

The audiologist who fit me with my first pair of hearing aids was detached, perfunctory, brusque.

Until I began kicking my heels on the chair legs.  And realizing that sound, in some form, had returned.

As I belted through “I’ve Been Working On the Railroad” and “Oh Susannah”, the audiologist’s attitude completely changed.

 

Surgery was a heartrending decision for my mother.  One that helped reclaim some of my hearing.surgery

 

But over the years, my hearing continued to fluctuate, and today, I am more profoundly deaf than the average deaf person you meet.

 

Years of interactions with the hearing world, speech therapy, lipreading practice, being fluent in sign language – all helped me communicate.

 

I used this for the good I felt I could do.  My mother’s frequent explanation that “people just don’t know”… encouraging me toward trying to build bridges between people of different abilities.

 

Rach pageant2

 

pageant2

bill signing1

 

And as I started the one year “speaking” tour as the scholarship pageant winner, I was accosted by countless comments of

 

You’re not REALLY deaf because you can speak.

You’re not REALLY deaf because you wear hearing aids.

 

 

In a story I rarely share, I was reprimanded by a pageant official because I attempted to help a deaf contestant understand that a restaurant waiter was asking if she wanted soup or salad.

 

And years later, this type of discriminatory commentary still happens.  Ironically, Deaf against deaf.  Incredible amounts of hostility.

 

Much of this vitriol was aimed at my mother, who was accused of “forcing” me into the hearing world.

It grieves me more now that I’m a mother and I’ve experienced the bewildering vastness of parenting decisions… any one of which is easy to imagine will screw up your child for life.

 

Can you imagine.  Your three-year old who loves cartoons and loves to sing and talks non-stop all the ever-loving day… telling her not to use her voice.  She can only sign – a language she doesn’t know.  No hearing aids to try to give her some semblance of what she has been used to for three years.  The deafness is dizzying… literally.  Yet you cannot continue to speak with her and must only use a brand new sign language to communicate with a very confused child.  Or you must send her away to a state-run deaf school so she can be with others of her “own kind”.  Your three-year old.  That was the Capital-D Deaf community’s militant opinion.

 

I choose that she did the loving and compassionate and brave thing. 

She refused to let go of me.

Gave me every single tool she could.
Signed with me constantly, and sang with me constantly.
And never let me use my deafness as an excuse (except in Marco Polo).



And this article… means to demean her for thinking she could “fix” me.  To demean you for celebrating someone who makes a hard decision.

 

I’m choosing not to shoot our wounded.

 


And I’m so glad that you’re willing to really hear me.

 

 

IMG_6621

 

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Sunday, March 09, 2014

online shopping gone wrong… horribly wrong

 

I do many things that come back to bite me.  Then I look at these online advertisements and realize that sometimes… I’m not completely dumb.

 

Despite the classy presentation of these… vegetables… I was somehow able to escape purchasing them for display in my home.

IMG_5644IMG_5645

IMG_5646

 

 

(So apparently cauliflower is much more valuable than cabbage.  But gilded slug “bitter melon” falls somewhere between them?)

 

Continuing with the Joss & Main goodness…

A bowl that will hold absolutely nothing.

IMG_4490

 

 

And a life-sized kangaroo.  With a baby!  Not awkward at all in your entryway.  And it’s a whole 7% off – hop to it!

IMG_5684

 

 

I shouldn’t knock them too much – they do have some amazing sales.

joss and main

 

I do love Joss & Main, but Zulily regularly trumps them for oddities.

 

Take this “special” number.

IMG_8688

Bless her heart.  A rainbow unicorn cheerleader as far as I can figure.

 

And this poor model with an unfortunate design that seems to be highlighting her reproductive organs.

IMG_9393

 

GAH.  Usually when my sweater gaps at the buttons like that, it’s not an intentional fashion statement.

IMG_9803

 

And this?  Was just a laugh-out-loud moment.  Now I feel like a total total bride fail because I didn’t get my bicep curls in on my wedding day.

IMG_0556

 

Then there’s this woman.  Who is totally surprised by that bride with the exercise weights. 

Look, she has an engagement ring on!  She’s probably taking notes.

IMG_9392

 

Then another sweater fail.  Does anyone else in marketing not see that this is a SEE THROUGH TOP?

They’re calling it a cardigan, but she’s wearing nothing under it.  Perhaps the sale price reflects that they used really minimal thread.

ivory lace cardigan Zulily

 

I was highly annoyed when I clicked on the link to find that the Godzilla bunny was not one of the accessories for sale.  Me likey.

IMG_0510

 

The kiddos were not immune.

 

For reals?  Someone put cucumber slices on a baby?

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What on earth do they have to de-stress over?  The fact that their third blowout of the day meant that they had to wear the least cute outfit in their wardrobe?  Perhaps the rainbow unicorn cheerleader getup?

 

Or this.  I’d stress over this.  For all the times my airplane tray has randomly fallen into my lap… I wouldn’t trust this.  Cucumbers please.

IMG_9997

 

And this one?  Is completely the business owner’s fault.  Who on earth names their company “SBD”?  Anyone else know exactly where my brain goes?

IMG_8175

 

(silent but deadly, for all of you who didn’t have male family members gifted in flatulence)

 

So I wanted to get this from Crate & Barrel when I had a sales code.  Way back before Christmas.  Except… I guess I can expect delivery now that it’s March?

ships in march2

 

Sephora really kind of freaked me out…

hazmat1

 

Here’s the fine print in case you can’t read it…

hazmat2

 


Excuse me.  HAZMAT?!?!

 

Another Sephora beauty:

Sephora1

 

Another close-up.  Because we all end up with that crisis of having stood next to a wind machine.  Right? Now the Fruit Cake one sounds like a legit emergency.

Sephora2

 

 

Sometimes you don’t even have to click out of your email to realize that it’s a doomed proposition.  Especially if they can’t spell.

IMG_9452

 

Or use contractions.

IMG_8601

 

Or they call you a senior citizen.  Grrr

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Or display absolutely ZERO familiarity with their target audience, and they offer you something like this:

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Do they not know that I have a Stupid Injury tally?  And that this would result in a really difficult to explain ER story?

 

And this last gem… reveals the crazy juvenile way my brain is wired.  It took forever for the picture to load, so when these words popped up, of course my first thought was…

 

IMG_8072

 

 

pee.

 

Alright? 

 

PEE.

 

I don’t even remember what the product was, but when I see “hold it”…
I think of the Pee-Pee Dance, and then the rest of the sentence left me in stitches.

 

And doing the Pee-Pee Dance.

 

 

Anything you would have bought?

Monday, February 17, 2014

Househunting: the good, the bad… nevermind, let’s just do the FAILS

 


Y’all…

Sometimes I just click on a realtor’s website and a mental soundtrack of

 

what on earth?

what on earth?

what on earth?

just plays endlessly on repeat.

 

 

Because I just don’t get it.  Putting photos of your home online should showcase the very best of what you’re trying to sell, right?  At least this time I’m not actually IN their homes, seeing my realtor walk in on them pooping.

 

(Still one of my very favorite True Story Tuesday’s, by the way).

 

Or locking myself in the bathroom of someone else’s home.

 

Or pulling up to see people laying naked next to the driveway.

 

Looking at pictures online should be a wee bit easier.  Except, last time it was really confusing.

 

(Random goats, cat butts, and fax machines in bathrooms, anyone?)

 

There’s a whole new slew of “I’m trying to sell you my house, so I’ll just showcase some oddities” out there online.

 

brace yourself

 

 

 

My first whizza-whazza? moment was this little furniture set up:

514339-06-alt

Is it an exercise room?  A cat sanctuary?  A viewing gallery?

 

I don’t know about you, but I avoid going to the gym because I feel like everyone is staring at me.  This would give me a complex.

 

 

Speaking of “everybody is watching me” complexes… Methinks this is just ASKING for performance anxiety.  Seriously… why?

windows

 

 

My OCD self wants to know why they only built 2/3 of that cabinet?  To make sure you had to vacuum under it?  Wait… why is there carpet anywhere near a sink?

under the cabinet

 

 

More bathroom sink trouble.  Is it just me?

sinks

 

 

And everyone needs a dishwasher in their bathroom.  I guess this could be called a SIX-piece master bath?  Don’t miss the coffee maker…

dishwasher

(Oh wait… could that be a towel warmer?  Now I’m confused.  But still… coffee maker???)

 

 

A coffeemaker might make more sense in an office… but

Holy Wire Mess Batman.

 

wires

 

 

Moving on to the bedroom.  Random patch of laminate flooring anyone?

Seriously, please help.  I want to know what this is for!  It isn’t the dining room, I already checked.

random hardwood

 

 

Lovely dining room!  Those randomly bare shelves are making me twitch.  Let’s invent a backstory about puppy-proofing the house.

shelves

 

 

Let’s talk about puppies and assorted pets for a minute.  I get that sellers might think it’s cute to include them in house-for-sale advertisements.  But the number of pet bombs that occur are frankly, quite frightening.

Did they NOT KNOW that their dog was in the crib?  Or is that the dog’s crib?  No response is going to make me feel better.

pet 3

(anyone else have a fridge in their bedroom?  Or is that the dog’s too?)

 

 

The next three photos are from the same house.  Seriously, is it that hard to get a photo without the pets?

Hey, and DOG BUTT!

 

doggies

pet 1

pet 2

 

 

 

These just make me laugh.  Because I can totally see this pooch insisting on being wherever the photo-taker is.  And he looks bewildered at the apparently invisible thing the photog is interested in.

dog again1

 

(random room devoted to ONE plant)

dog again2

 

 

 

CAT BUTT!

(we’re so mature around here)

cat again

 

 

But ohmygoodness, CAT BUTT!  Who wants that on their dinner table?!

kitty on table

 

Mind bleach.

 

Switching to kitchens…

 

How do you suppose the average person is supposed to reach the pots and pans that are hanging from the skylight?

(Not to mention a people McNugget like me?)

 

reach the pots

 

 

Or hanging from the ceiling fan, for that matter?

pots from fan

(I jest, I jest.  But I sure did think they were when I first saw this photo).

 

 

And just so y’all can puzzle it with me.  How do you work in this kitchen?

It’s kind of like a Tetris deal.

 

kitchen

 

 

And my least favorite:

pool shark2

 

Who paints a shark next to their indoor pool?

 

Cue JAWS terror.

But, y’know, that brick fireplace just makes it all make sense.

 

 

We’re surviving this season of house-hunting.

 

 


Have you had any of your own adventures?

 

(All photos via real estate advertisements and Google.  Please don’t sue me because I outed your dog sleeping in a crib.)

 

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